Knowledge Base
The Dementia Seizure Spectrum, in the open, a field guide to the seizures that don't look like seizures, the evidence behind them, and how to recognize, document, and respond.
From the Manifesto →The Dementia Seizure Spectrum™ organizes how seizures actually present in dementia. Start with the domain closest to what you're seeing.
Loss of consciousness, muscle stiffening, drop attacks: the presentations most recognizable as seizures, and the most likely to prompt a neurological referral.
Read the domain →Involuntary, repetitive motor signs (lip smacking, hand automatisms, rhythmic movements) routinely attributed to restlessness or dementia progression.
Read the domain →Sudden unresponsiveness, blank staring, unexplained confusion after an episode: the most frequently missed presentations in dementia care.
Frequently missed Read the domain →Explosive, unprovoked fear, aggression, or confusion followed by unusual exhaustion: most often misattributed to sundowning or behavioral symptoms of dementia.
Most often misattributed Read the domain →The same signal can be charted in the language of decline, or recognized as a documented seizure presentation that warrants evaluation. Learning the translation is the first skill.
Most clinical frameworks are documents: a definition, a diagram, a PDF. The Dementia Seizure Spectrum is an operating standard. We run it: as a simulation of what goes unseen, as a structured evaluation of a single person, and as a lens over an entire population of facilities. Below are the instruments themselves.
An interactive model of silent-seizure detection across a memory care census: standard observation against a structured surveillance protocol, over time. Watch the gap open between what happens and what gets seen.
Explore the model →The DSS Index starts with a simple idea. Government inspection records for every nursing home in the country contain signals that can point to missed seizure activity in dementia patients, if you know what to look for. The Dementia Seizure Spectrum Framework is the clinical foundation that makes those signals visible. This system finds them, cross-references them with the medical literature, and maps the silent epidemic of unrecognized seizures hiding in plain sight across American nursing homes.
Explore the Index →In dementia, seizures don't look like seizures. They look like a blank stare, a sudden behavioral episode, a period of confusion that seems to come from nowhere. This anonymous tool walks you through 24 research-supported indicators across the four domains of the Dementia Seizure Spectrum and returns a plain-language evidence summary you can share with a physician or care team. Free. About five minutes. Available in your browser and on WhatsApp.
Start an evaluation →Use the framework freely. When you need it applied to a real case, facility, or trial, that's what a CRISP assessment delivers.